The value of life can be measured by how many obstacles you faced and overcame.
Meet 14-year old Jonathan Pitre of Russell, Ontario. He was born with a rare genetic skin condition called Epidermolysis Bullosa (EB), which is known as one of the most painful cases in modern medicine. Patients with this kind of condition have extremely fragile skin that’s why they are called “butterfly children.”. Their bodies are mapped with raw blisters and in most cases; the entire body has to be wrapped in bandages to avoid infection. Eating can be very difficult as well because blisters can from inside the mouth and throat making it hard for the patient to chew and swallow. It is impossible for patients suffering in this kind of skin disorder not to experience pain even for at least, just one day.
Though Jonathan knows that he is bound to spend the rest of his life in excruciating pain, his courage and determination to live are way bigger than his misery. In an interview he said, “Great things do not come easily, but they do come when you try with your full heart, when you’re willing and open to embrace life, when you take things one day at a time and use what you’ve got.”
Learn more about Jonathan’s story and help raise awareness about the disease by watching and sharing this video to your friends.